Steve Koerber's Old Blog

Remuera's house sold name since 1998 – 021864166

Posts Tagged ‘infliximab’

Living with Psoriatic Arthritis

Posted by Steve Koerber on November 30, 2008

Click here to view a NZ Herald article about my experience with the arthritis drug Humira.

As a postscript to the above story, Humira started to lose its effectiveness in early 2008.  Inflammation was slowly returning to my body.  Luckily I switched to an Auckland District Health Board (ADHB) funded similar TNF-Inhibitor called Infliximab (sometimes known as Remicade).

I am essentially pain free.  Blood tests show that I have no inflammation.  Life is great!  I am an active, hard-working, successful real estate salesperson and a proud father of three young children.

I feel that I have chosen a good path managing  arthritis and I am in a very good space both physically and mentally.  I welcome questions from anyone with arthritis (especially psoriatic arthritis – closely related to rheumatoid arthritis).  I may be able to help you if you are trying to navigate a path out of pain.  With respect, I don’t welcome questions from people offering magnetic mattresses and herbal pills!

Getting on and off various arthritis drugs can be a minefield.  I was on methotrexate for about 5 years and it didn’t agree with me at all.  I interviewed virtually all Auckland Rheumatologists until I found one I could relate to and who I felt was best equipped to help me navigate the minefield (Fiona McQueen).  Being persistent, not taking “no” for an answer, searching for solutions, I arrived in a good place.  Other rheumatologists I interviewed were too quick to prescribe, too slow to listen!

(PS  – after writing the second last para above I deleted the word “my” from in front of “arthritis”.  Part of my disease management process is to “not” take ownership of the disease.  A simple shift in thinking.  Works for me!)

UPDATE JULY 09 – Pharmac is likley to approve Humira for RA from 1 August 2009.  Check this link from the Arthritis New Zealand website for more details.  Interestingly though for me, even with this breakthrough, unless my DHB was kindly funding Infliximab, I would still be in pain today…but luckily I’m not!

UPDATE Mar 2010 – Going great guns.  No pain.  No inflammation.  Wow!

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